{"id":6139,"date":"2024-06-26T16:10:35","date_gmt":"2024-06-26T14:10:35","guid":{"rendered":"https:\/\/apaiser.org\/newsite\/?page_id=6139"},"modified":"2025-03-03T18:29:29","modified_gmt":"2025-03-03T17:29:29","slug":"prise-en-charge-medicale","status":"publish","type":"page","link":"https:\/\/apaiser.org\/newsite\/prise-en-charge-medicale\/","title":{"rendered":"Prise en charge m\u00e9dicale"},"content":{"rendered":"\t\t
\n\t\t\t\t
\n\t\t\t\t\t
\n\t\t
\n\t\t\t\t
\n\t\t\t\t\t

Vivre avec<\/h2>\t\t\t\t<\/div>\n\t\t\t\t
\n\t\t\t\t\t\t\t
\n\t\t\t
<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
\n\t\t\t\t
\n\t\t\t\t\t\t\t\t\t

Accueil<\/a> \/ Vivre avec \/Prise en charge m\u00e9dicale<\/a>
<\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

\n\t\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\"\"\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
\n\t\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t\t\t\t\n\t\t
\n\n\t\t\t\t\t\t\t\t

\n\t\t\t\t\t\t\t\t\n\t\t\t\tPrise en charge m\u00e9dicale \n\t\t\t<\/h1 > \n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
\n\t\t\t\t\t
\n\t\t
\n\t\t\t\t
\n\t\t\t\t\t\t\t\t\t

Sous l\u2019impulsion des associations de patients, les maladies rares ont \u00e9t\u00e9 officiellement reconnues comme l\u2019une des quatre priorit\u00e9s par la loi Sant\u00e9 publique du 9 ao\u00fbt 2004, pr\u00e9voyant la mise en \u0153uvre du premier plan national maladies rares en 2005.\u00a0 Les plans nationaux maladies rares (PNMR) organisent la prise en charge des malades par des centres de r\u00e9f\u00e9rence,\u00a0 rassemblant une \u00e9quipe hospitali\u00e8re pluridisciplinaire hautement sp\u00e9cialis\u00e9e sur une maladie ou un groupe de maladies.<\/p>

Afin d\u2019assurer l’\u00e9galit\u00e9 de prise en charge sur le territoire, les centres de r\u00e9f\u00e9rence s\u2019appuient sur un r\u00e9seau de centres de comp\u00e9tence qui en compl\u00e8tent le maillage territorial, et assurent le suivi des patients au plus proche de leur domicile.<\/p>

\"\"<\/a><\/p>

T\u00e9l\u00e9chargez le PNMR4 en vigueur
<\/a><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

\n\t\t\t\t
\n\t\t\t\t\t\t\t
\n\t\t\t
<\/div>\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
\n\t\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t\t

Le centre de r\u00e9f\u00e9rence C-MAVEM<\/h2>\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
\n\t\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t\t\t\t\t\t

\"Centre<\/a>Le centre de r\u00e9f\u00e9rence, qui a pour mission premi\u00e8re d\u2019assurer les soins et la prise en charge des patients, assume \u00e9galement des missions d\u2019\u00e9ducation, de formation et de recherche. Il d\u00e9livre en particulier l\u2019information aux m\u00e9decins traitants et autres professionnels de sant\u00e9 pour am\u00e9liorer la prise en charge des patients, en \u00e9laborant notamment les protocoles nationaux de diagnostic et de soins (PNDS) pour chacune des pathologies suivies.<\/p>

Labellis\u00e9 pour la syringomy\u00e9lie depuis 2007 et pour la malformation de Chiari, les dysraphismes et autres malformations m\u00e9dullaires rares depuis 2027,\u00a0 Le centre de r\u00e9f\u00e9rence multisites s’articule autour d\u2019un centre coordonnateur situ\u00e9 \u00e0 l\u2019h\u00f4pital Bic\u00eatre dirig\u00e9 par le Pr Fabrice Parker, et de 5 centres constitutifs qui apportent une compl\u00e9mentarit\u00e9 d\u2019expertise, de recours, de recherche et de formation, et structurent pour certains d’entre-eux la transition p\u00e9diatrie-adulte.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t

Le centre coordonnateur<\/h2>\t\t\t\t<\/div>\n\t\t
\n\t\t
\n\t\t
\n\t\t\t\t
\n\t\t\t\t\t
\"\"<\/figure>

LE KREMLIN-BIC\u00caTRE<\/h3>

Pr\u00a0Fabrice PARKER<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t
\"\"<\/figure>
H\u00f4pital Bic\u00eatre<\/div>

78, avenue du G\u00e9n\u00e9ral Leclerc\n94270 Le Kremlin-Bic\u00eatre<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t
\"\"<\/figure>

01 45 21 22 88<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t
\"\"<\/a><\/figure>
Doctolib<\/a><\/div>

Prendre rendez-vous<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t
\"\"<\/figure>
Consultation priv\u00e9e <\/div>

jocelyne.bastien@aphp.fr \n\n01 45 21 23 80<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t
\"\"<\/figure>

Neurochirurgie adultes<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

\n\t\t
\n\t\t\t\t
\n\t\t\t\t\t
\"\"<\/figure>

LE KREMLIN-BIC\u00caTRE<\/h3>

Pr\u00a0Nozar AGUAKNANI<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t
\"\"<\/figure>
H\u00f4pital Bic\u00eatre<\/div>

78, avenue du G\u00e9n\u00e9ral Leclerc\n94270 Le Kremlin-Bic\u00eatre<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t
\"\"<\/figure>

01 45 21 22 88<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t
\"\"<\/a><\/figure>
Doctolib<\/a><\/div>

Prendre rendez-vous<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t
\"\"<\/figure>

Neurochirurgie adultes<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

\n\t\t
\n\t\t\t\t
\n\t\t\t\t\t
\"\"<\/figure>

LE KREMLIN-BIC\u00caTRE<\/h3>

Dr Silvia MORAR<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t
\"\"<\/figure>
H\u00f4pital Bic\u00eatre<\/div>

78, avenue du G\u00e9n\u00e9ral Leclerc\n94270 Le Kremlin-Bic\u00eatre<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t
\"\"<\/figure>

01 45 21 22 88<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t
\"\"<\/a><\/figure>
Doctolib<\/a><\/div>

Prendre rendez-vous<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t
\"\"<\/figure>

Neurochirurgie adultes<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

\n\t\t
\n\t\t
\n\t\t\t\t
\n\t\t\t\t\t
\"\"<\/figure>

LE KREMLIN-BIC\u00caTRE<\/h3>

Dr Anne HERBRECHT<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t
\"\"<\/figure>
H\u00f4pital Bic\u00eatre<\/div>

78, avenue du G\u00e9n\u00e9ral Leclerc\n94270 Le Kremlin-Bic\u00eatre<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t
\"\"<\/figure>

01 45 21 22 88<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t
\"\"<\/a><\/figure>
Doctolib<\/a><\/div>

Prendre rendez-vous<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t
\"\"<\/figure>

Neurochirurgie adultes<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

\n\t\t
\n\t\t\t\t
\n\t\t\t\t\t
\"\"<\/figure>

LE KREMLIN-BIC\u00caTRE<\/h3>

Dr Steven KNAFO<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t
\"\"<\/figure>
H\u00f4pital Bic\u00eatre<\/div>

78, avenue du G\u00e9n\u00e9ral Leclerc\n94270 Le Kremlin-Bic\u00eatre<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t
\"\"<\/figure>

01 45 21 22 88<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t
\"\"<\/a><\/figure>
Doctolib<\/a><\/div>

Prendre rendez-vous<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t
\"\"<\/figure>

Neurochirurgie adultes<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t

Les centres constitutifs<\/h2>\t\t\t\t<\/div>\n\t\t
\n\t\t
\n\t\t
\n\t\t\t\t
\n\t\t\t\t\t
\"\"<\/figure>

LYON<\/h3>

Pr\u00a0Federico DI ROCCO<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t
\"\"<\/figure>
H\u00f4pital Femme M\u00e8re Enfant<\/div>

59 Boulevard Pinel\n69500 Bron<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t
\"\"<\/figure>

04 72 35 75 72 <\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t
\"\"<\/a><\/figure>
MyHCL<\/a><\/div>

Prendre rendez-vous<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t
\"\"<\/figure>

Neurochirurgie enfants<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

\n\t\t
\n\t\t\t\t
\n\t\t\t\t\t
\"\"<\/figure>

NANCY<\/h3>

Pr Olivier KLEIN<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t
\"\"<\/figure>
H\u00f4pitaux de Brabois<\/div>

Rue du Morvan, 54511 Vandoeuvre-l\u00e8s-Nancy<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t
\"\"<\/figure>

03 83 15 52 11<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t
\"\"<\/figure>

Neurochirurgie adultes<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t
\"\"<\/figure>

Neurochirurgie enfants<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

\n\t\t
\n\t\t\t\t
\n\t\t\t\t\t
\"\"<\/figure>

PARIS<\/h3>

Pr G\u00e9rard AMARENCO<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t
\"\"<\/figure>
H\u00f4pital de la Piti\u00e9 Salp\u00eatri\u00e8re<\/div>

Service de Neuro-Urologie, DMU Neurosciences,\n47-83 Bd de l'H\u00f4pital, 75013 Paris, France<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t
\"\"<\/figure>

01 56 01 76 13<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t
\"\"<\/figure>

Neuro-urologie adultes<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

\n\t\t
\n\t\t
\n\t\t\t\t
\n\t\t\t\t\t
\"\"<\/figure>

PARIS<\/h3>

Dr Syril JAMES<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t
\"\"<\/figure>
H\u00f4pital universitaire Necker-Enfants malades<\/div>

149 rue de S\u00e8vres\n75743 PARIS Cedex 15<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t
\"\"<\/figure>

01 44 49 42 67<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t
\"\"<\/figure>

syril.james@aphp.fr<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t
\"\"<\/figure>

Neurochirurgie enfants \n<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

\n\t\t
\n\t\t\t\t
\n\t\t\t\t\t
\"\"<\/figure>

MARSEILLE<\/h3>

Pr\u00a0Alice FAURE<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t
\"\"<\/figure>
H\u00f4pitaux Universitaires de Marseille Timone<\/div>

264 Rue Saint-Pierre, 13005 Marseille<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t
\"\"<\/figure>

04 91 38 66 82<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t
\"\"<\/figure>
Spina-Bifida<\/div>

Urologie enfants \n<\/p><\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t

Les centres de comp\u00e9tence<\/h2>\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
\n\t\t\t\t\t
\n\t\t
\n\t\t\t\t
\n\t\t\t\t\t\t\t\t\t

Les centres de comp\u00e9tence ont vocation \u00e0 assurer la prise en charge et le suivi des patients au plus proche de leur domicile.<\/p>

Ils participent au diagnostic des maladies rares, mettent en \u0153uvre la th\u00e9rapeutique lorsqu\u2019elle est disponible, et organisent la prise en charge des patients en lien avec le centre de r\u00e9f\u00e9rence auquel ils sont rattach\u00e9s et avec l\u2019ensemble des acteurs concourant \u00e0 la prise en charge de proximit\u00e9.<\/p>

Recherchez le centre de comp\u00e9tence et les professionnels de sant\u00e9 proches de chez vous en utilisant la carte interactive.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t

\n\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t\t
\n
\n
\n
\n
<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div><\/div>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
\n\t\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t\t\t\t
\n\t\t\t
<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t
\n\t\t
\n\t\t\t\t\t
\n\t\t\t\t
\n\t\t\t\t\t\t\t
\n\t\t\t\n\t\t\t\t\t\t<\/span>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t
\n\t\t\t\t\t

La fili\u00e8re Neurosphinx<\/h3>\t\t\t\t<\/div>\n\t\t\t\t
\n\t\t\t\t\t\t\t\t\t

\"\"<\/a>Cr\u00e9\u00e9es en 2014 et 2015 dans le cadre du deuxi\u00e8me plan national maladies rares, les fili\u00e8res de sant\u00e9 maladies rares (FSMR) ont pour objectif d\u2019animer et de coordonner les actions en r\u00e9unissant les centres de r\u00e9f\u00e9rence et de comp\u00e9tence, mais aussi les laboratoires de diagnostic, les unit\u00e9s de recherche et universit\u00e9s, les structures \u00e9ducatives, sociales et m\u00e9dico-sociales, ainsi que les associations de patients.<\/p>

La fili\u00e8re NeuroSphinx r\u00e9unit depuis 2014 les trois centres de r\u00e9f\u00e9rence d\u00e9di\u00e9s aux malformations m\u00e9dullaires et pelviennes : C-MAVEM (Chiari, Syringomy\u00e9lie et malformations vert\u00e9brales et m\u00e9dullaires rares), MAREP (malformations ano-rectales et pelviennes rares) et MARVU (malformations rares des voies urinaires), ainsi que 15 associations de patients, dont APAISER S&C.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t

\n\t\t\t\t\t\t\t
\n\t\t\t
<\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"

Vivre avec Accueil \/ Vivre avec \/Prise en charge m\u00e9dicale Prise en charge m\u00e9dicale Sous l\u2019impulsion des associations de patients, les maladies rares ont \u00e9t\u00e9 officiellement reconnues comme l\u2019une des […]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"elementor_header_footer","meta":{"inline_featured_image":false,"footnotes":""},"class_list":["post-6139","page","type-page","status-publish","hentry"],"yoast_head":"\nPrise en charge m\u00e9dicale - Apaiser S&C<\/title>\n<meta name=\"description\" content=\"Organisation de la prise en charge m\u00e9dicale du Chiari et de la Syringmy\u00e9lie : centre de r\u00e9f\u00e9rence C-Mavem et centres de comp\u00e9tence.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/apaiser.org\/newsite\/prise-en-charge-medicale\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Prise en charge m\u00e9dicale - Apaiser S&C\" \/>\n<meta property=\"og:description\" content=\"Organisation de la prise en charge m\u00e9dicale du Chiari et de la Syringmy\u00e9lie : centre de r\u00e9f\u00e9rence C-Mavem et centres de comp\u00e9tence.\" \/>\n<meta property=\"og:url\" content=\"https:\/\/apaiser.org\/newsite\/prise-en-charge-medicale\/\" \/>\n<meta property=\"og:site_name\" content=\"Apaiser S&C\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/AssociationApaiser\/\" \/>\n<meta property=\"article:modified_time\" content=\"2025-03-03T17:29:29+00:00\" \/>\n<meta property=\"og:image\" content=\"http:\/\/apaiser.org\/newsite\/wp-content\/uploads\/2024\/06\/barre-couleurs.png\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Dur\u00e9e de lecture estim\u00e9e\" \/>\n\t<meta name=\"twitter:data1\" content=\"15 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/apaiser.org\\\/newsite\\\/prise-en-charge-medicale\\\/\",\"url\":\"https:\\\/\\\/apaiser.org\\\/newsite\\\/prise-en-charge-medicale\\\/\",\"name\":\"Prise en charge m\u00e9dicale - Apaiser S&C\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/apaiser.org\\\/newsite\\\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\\\/\\\/apaiser.org\\\/newsite\\\/prise-en-charge-medicale\\\/#primaryimage\"},\"image\":{\"@id\":\"https:\\\/\\\/apaiser.org\\\/newsite\\\/prise-en-charge-medicale\\\/#primaryimage\"},\"thumbnailUrl\":\"http:\\\/\\\/apaiser.org\\\/newsite\\\/wp-content\\\/uploads\\\/2024\\\/06\\\/barre-couleurs.png\",\"datePublished\":\"2024-06-26T14:10:35+00:00\",\"dateModified\":\"2025-03-03T17:29:29+00:00\",\"description\":\"Organisation de la prise en charge m\u00e9dicale du Chiari et de la Syringmy\u00e9lie : centre de r\u00e9f\u00e9rence C-Mavem et centres de comp\u00e9tence.\",\"breadcrumb\":{\"@id\":\"https:\\\/\\\/apaiser.org\\\/newsite\\\/prise-en-charge-medicale\\\/#breadcrumb\"},\"inLanguage\":\"fr-FR\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\\\/\\\/apaiser.org\\\/newsite\\\/prise-en-charge-medicale\\\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"fr-FR\",\"@id\":\"https:\\\/\\\/apaiser.org\\\/newsite\\\/prise-en-charge-medicale\\\/#primaryimage\",\"url\":\"http:\\\/\\\/apaiser.org\\\/newsite\\\/wp-content\\\/uploads\\\/2024\\\/06\\\/barre-couleurs.png\",\"contentUrl\":\"http:\\\/\\\/apaiser.org\\\/newsite\\\/wp-content\\\/uploads\\\/2024\\\/06\\\/barre-couleurs.png\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\\\/\\\/apaiser.org\\\/newsite\\\/prise-en-charge-medicale\\\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Accueil\",\"item\":\"https:\\\/\\\/apaiser.org\\\/newsite\\\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Prise en charge m\u00e9dicale\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\\\/\\\/apaiser.org\\\/newsite\\\/#website\",\"url\":\"https:\\\/\\\/apaiser.org\\\/newsite\\\/\",\"name\":\"Apaiser S&C\",\"description\":\"Associaton pour Aider, Informer, Soutenir les Etudes et la Recherche pour la syingomy\u00e9lie et le Chiari\",\"publisher\":{\"@id\":\"https:\\\/\\\/apaiser.org\\\/newsite\\\/#organization\"},\"alternateName\":\"Association pour aide, informer, soutenir les \u00e9tudes et la recherche pou la syringomy\u00e9lie et le chiari\",\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\\\/\\\/apaiser.org\\\/newsite\\\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"fr-FR\"},{\"@type\":\"Organization\",\"@id\":\"https:\\\/\\\/apaiser.org\\\/newsite\\\/#organization\",\"name\":\"Apaiser S&C\",\"alternateName\":\"Association pour aider, informer, soutenir les \u00e9tudes et la recherche pour la syingomy\u00e9lie et le Chiari\",\"url\":\"https:\\\/\\\/apaiser.org\\\/newsite\\\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"fr-FR\",\"@id\":\"https:\\\/\\\/apaiser.org\\\/newsite\\\/#\\\/schema\\\/logo\\\/image\\\/\",\"url\":\"https:\\\/\\\/apaiser.org\\\/newsite\\\/wp-content\\\/uploads\\\/2024\\\/06\\\/logo.png\",\"contentUrl\":\"https:\\\/\\\/apaiser.org\\\/newsite\\\/wp-content\\\/uploads\\\/2024\\\/06\\\/logo.png\",\"width\":173,\"height\":136,\"caption\":\"Apaiser S&C\"},\"image\":{\"@id\":\"https:\\\/\\\/apaiser.org\\\/newsite\\\/#\\\/schema\\\/logo\\\/image\\\/\"},\"sameAs\":[\"https:\\\/\\\/www.facebook.com\\\/AssociationApaiser\\\/\",\"https:\\\/\\\/www.instagram.com\\\/apaisersc\\\/\",\"https:\\\/\\\/www.youtube.com\\\/@apaiser7806\"]}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Prise en charge m\u00e9dicale - Apaiser S&C","description":"Organisation de la prise en charge m\u00e9dicale du Chiari et de la Syringmy\u00e9lie : centre de r\u00e9f\u00e9rence C-Mavem et centres de comp\u00e9tence.","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/apaiser.org\/newsite\/prise-en-charge-medicale\/","og_locale":"fr_FR","og_type":"article","og_title":"Prise en charge m\u00e9dicale - Apaiser S&C","og_description":"Organisation de la prise en charge m\u00e9dicale du Chiari et de la Syringmy\u00e9lie : centre de r\u00e9f\u00e9rence C-Mavem et centres de comp\u00e9tence.","og_url":"https:\/\/apaiser.org\/newsite\/prise-en-charge-medicale\/","og_site_name":"Apaiser S&C","article_publisher":"https:\/\/www.facebook.com\/AssociationApaiser\/","article_modified_time":"2025-03-03T17:29:29+00:00","og_image":[{"url":"http:\/\/apaiser.org\/newsite\/wp-content\/uploads\/2024\/06\/barre-couleurs.png","type":"","width":"","height":""}],"twitter_card":"summary_large_image","twitter_misc":{"Dur\u00e9e de lecture estim\u00e9e":"15 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"WebPage","@id":"https:\/\/apaiser.org\/newsite\/prise-en-charge-medicale\/","url":"https:\/\/apaiser.org\/newsite\/prise-en-charge-medicale\/","name":"Prise en charge m\u00e9dicale - Apaiser S&C","isPartOf":{"@id":"https:\/\/apaiser.org\/newsite\/#website"},"primaryImageOfPage":{"@id":"https:\/\/apaiser.org\/newsite\/prise-en-charge-medicale\/#primaryimage"},"image":{"@id":"https:\/\/apaiser.org\/newsite\/prise-en-charge-medicale\/#primaryimage"},"thumbnailUrl":"http:\/\/apaiser.org\/newsite\/wp-content\/uploads\/2024\/06\/barre-couleurs.png","datePublished":"2024-06-26T14:10:35+00:00","dateModified":"2025-03-03T17:29:29+00:00","description":"Organisation de la prise en charge m\u00e9dicale du Chiari et de la Syringmy\u00e9lie : centre de r\u00e9f\u00e9rence C-Mavem et centres de comp\u00e9tence.","breadcrumb":{"@id":"https:\/\/apaiser.org\/newsite\/prise-en-charge-medicale\/#breadcrumb"},"inLanguage":"fr-FR","potentialAction":[{"@type":"ReadAction","target":["https:\/\/apaiser.org\/newsite\/prise-en-charge-medicale\/"]}]},{"@type":"ImageObject","inLanguage":"fr-FR","@id":"https:\/\/apaiser.org\/newsite\/prise-en-charge-medicale\/#primaryimage","url":"http:\/\/apaiser.org\/newsite\/wp-content\/uploads\/2024\/06\/barre-couleurs.png","contentUrl":"http:\/\/apaiser.org\/newsite\/wp-content\/uploads\/2024\/06\/barre-couleurs.png"},{"@type":"BreadcrumbList","@id":"https:\/\/apaiser.org\/newsite\/prise-en-charge-medicale\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Accueil","item":"https:\/\/apaiser.org\/newsite\/"},{"@type":"ListItem","position":2,"name":"Prise en charge m\u00e9dicale"}]},{"@type":"WebSite","@id":"https:\/\/apaiser.org\/newsite\/#website","url":"https:\/\/apaiser.org\/newsite\/","name":"Apaiser S&C","description":"Associaton pour Aider, Informer, Soutenir les Etudes et la Recherche pour la syingomy\u00e9lie et le Chiari","publisher":{"@id":"https:\/\/apaiser.org\/newsite\/#organization"},"alternateName":"Association pour aide, informer, soutenir les \u00e9tudes et la recherche pou la syringomy\u00e9lie et le chiari","potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/apaiser.org\/newsite\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"fr-FR"},{"@type":"Organization","@id":"https:\/\/apaiser.org\/newsite\/#organization","name":"Apaiser S&C","alternateName":"Association pour aider, informer, soutenir les \u00e9tudes et la recherche pour la syingomy\u00e9lie et le Chiari","url":"https:\/\/apaiser.org\/newsite\/","logo":{"@type":"ImageObject","inLanguage":"fr-FR","@id":"https:\/\/apaiser.org\/newsite\/#\/schema\/logo\/image\/","url":"https:\/\/apaiser.org\/newsite\/wp-content\/uploads\/2024\/06\/logo.png","contentUrl":"https:\/\/apaiser.org\/newsite\/wp-content\/uploads\/2024\/06\/logo.png","width":173,"height":136,"caption":"Apaiser S&C"},"image":{"@id":"https:\/\/apaiser.org\/newsite\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/AssociationApaiser\/","https:\/\/www.instagram.com\/apaisersc\/","https:\/\/www.youtube.com\/@apaiser7806"]}]}},"rttpg_featured_image_url":null,"rttpg_author":{"display_name":"fpiriou","author_link":"https:\/\/apaiser.org\/newsite\/author\/fpiriou\/"},"rttpg_comment":0,"rttpg_category":null,"rttpg_excerpt":"Vivre avec Accueil \/ Vivre avec \/Prise en charge m\u00e9dicale Prise en charge m\u00e9dicale Sous l\u2019impulsion des associations de patients, les maladies rares ont \u00e9t\u00e9 officiellement reconnues comme l\u2019une des […]","_links":{"self":[{"href":"https:\/\/apaiser.org\/newsite\/wp-json\/wp\/v2\/pages\/6139","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/apaiser.org\/newsite\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/apaiser.org\/newsite\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/apaiser.org\/newsite\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/apaiser.org\/newsite\/wp-json\/wp\/v2\/comments?post=6139"}],"version-history":[{"count":83,"href":"https:\/\/apaiser.org\/newsite\/wp-json\/wp\/v2\/pages\/6139\/revisions"}],"predecessor-version":[{"id":8254,"href":"https:\/\/apaiser.org\/newsite\/wp-json\/wp\/v2\/pages\/6139\/revisions\/8254"}],"wp:attachment":[{"href":"https:\/\/apaiser.org\/newsite\/wp-json\/wp\/v2\/media?parent=6139"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}