{"id":9138,"date":"2026-11-03T19:46:42","date_gmt":"2026-11-03T18:46:42","guid":{"rendered":"https:\/\/apaiser.org\/newsite\/?page_id=9138"},"modified":"2026-11-03T19:54:29","modified_gmt":"2026-11-03T18:54:29","slug":"enquete-vivre-avec-le-chiari-ou-la-syringomyelie","status":"publish","type":"page","link":"https:\/\/apaiser.org\/newsite\/enquete-vivre-avec-le-chiari-ou-la-syringomyelie\/","title":{"rendered":"Enqu\u00eate &#8220;vivre avec le Chiari ou la syringomy\u00e9lie&#8221;"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-page\" data-elementor-id=\"9138\" class=\"elementor elementor-9138\" data-elementor-post-type=\"page\">\n\t\t\t\t<div class=\"elementor-element elementor-element-67b28ac5 e-flex e-con-boxed e-con e-parent\" data-id=\"67b28ac5\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-30ea6052 e-con-full e-flex e-con e-child\" data-id=\"30ea6052\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-26ec32a7 elementor-widget elementor-widget-heading\" data-id=\"26ec32a7\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h2 class=\"elementor-heading-title elementor-size-default\">Recherche m\u00e9dicale<\/h2>\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-4b3074e4 elementor-widget elementor-widget-spacer\" data-id=\"4b3074e4\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-b900b34 e-con-full e-flex e-con e-child\" data-id=\"b900b34\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-4ebf7ebf elementor-widget elementor-widget-text-editor\" data-id=\"4ebf7ebf\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p style=\"text-align: right;\"><span style=\"color: #ffffff;\"><a style=\"color: #ffffff;\" href=\"https:\/\/apaiser.org\/newsite\/\">Accueil<\/a> \/ Recherche m\u00e9dicale \/Vivre avec<br \/><\/span><\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-6096421d e-flex e-con-boxed e-con e-parent\" data-id=\"6096421d\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-4fe97df3 elementor-widget elementor-widget-image\" data-id=\"4fe97df3\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" width=\"751\" height=\"37\" src=\"https:\/\/apaiser.org\/newsite\/wp-content\/uploads\/2024\/06\/barre-couleurs.png\" class=\"attachment-large size-large wp-image-4356\" alt=\"\" srcset=\"https:\/\/apaiser.org\/newsite\/wp-content\/uploads\/2024\/06\/barre-couleurs.png 751w, https:\/\/apaiser.org\/newsite\/wp-content\/uploads\/2024\/06\/barre-couleurs-300x15.png 300w\" sizes=\"(max-width: 751px) 100vw, 751px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-1feb0ccb e-flex e-con-boxed e-con e-parent\" data-id=\"1feb0ccb\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-3efcca82 elementor-widget elementor-widget-page-title\" data-id=\"3efcca82\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"page-title.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\n\t\t<div class=\"hfe-page-title hfe-page-title-wrapper elementor-widget-heading\">\n\n\t\t\t\t\t\t\t\t<h1 class=\"elementor-heading-title elementor-size-default\">\n\t\t\t\t\t\t\t\t\n\t\t\t\tEnqu\u00eate &#8220;vivre avec le Chiari ou la syringomy\u00e9lie&#8221;  \n\t\t\t<\/h1 > \n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-51f96869 e-flex e-con-boxed e-con e-parent\" data-id=\"51f96869\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t\t\t<div class=\"elementor-element elementor-element-36ab8196 elementor-widget elementor-widget-spacer\" data-id=\"36ab8196\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"spacer.default\">\n\t\t\t\t\t\t\t<div class=\"elementor-spacer\">\n\t\t\t<div class=\"elementor-spacer-inner\"><\/div>\n\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-d67ea91 e-flex e-con-boxed e-con e-parent\" data-id=\"d67ea91\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-d3665a7 e-con-full e-flex e-con e-child\" data-id=\"d3665a7\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t<div class=\"elementor-element elementor-element-2ef015b e-con-full e-flex e-con e-child\" data-id=\"2ef015b\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-81bc136 elementor-widget elementor-widget-text-editor\" data-id=\"81bc136\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p data-pm-slice=\"1 1 []\">Cinq ans apr\u00e8s la r\u00e9alisation de l\u2019enqu\u00eate \u00ab Vivre avec le Chiari ou la syringomy\u00e9lie \u00bb, visant \u00e0 objectiver l\u2019impact de la maladie sur la qualit\u00e9 de vie des personnes atteintes de nos pathologies et de leurs aidants, APAISER S&amp;C a d\u00e9cid\u00e9 de renouveler et d\u2019approfondir notre d\u00e9marche.<\/p><p>Quatre nouveaux questionnaires th\u00e9matiques ont \u00e9t\u00e9 \u00e9labor\u00e9s par un groupe de travail, \u00e0 partir des besoins et des attentes exprim\u00e9s par les adh\u00e9rents : vivre avec la douleur, grandir avec la maladie, accompagner un enfant malade et vivre l\u2019apr\u00e8s-diagnostic. Ces sujets refl\u00e8tent aussi l\u2019\u00e9volution de notre association et sa volont\u00e9 de renforcer son action sur les dimensions familiales et psychologiques de la maladie, en compl\u00e9ment des enjeux m\u00e9dicaux et sociaux.<\/p><p>Vos r\u00e9ponses nous permettront de mieux comprendre vos exp\u00e9riences, de faire conna\u00eetre vos besoins et d\u2019orienter nos actions d\u2019information, d\u2019accompagnement et de plaidoyer. Nous vous remercions par avance du temps que vous consacrerez \u00e0 ces questionnaires : votre contribution est pr\u00e9cieuse pour construire une action associative au plus pr\u00e8s de vos r\u00e9alit\u00e9s.<\/p><p>\u00a0<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-6fc7800 e-con-full e-flex e-con e-child\" data-id=\"6fc7800\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-765aa0f elementor-widget elementor-widget-image\" data-id=\"765aa0f\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"800\" height=\"533\" src=\"https:\/\/apaiser.org\/newsite\/wp-content\/uploads\/2026\/11\/mockupvivreavec.jpg\" class=\"attachment-large size-large wp-image-9148\" alt=\"\" srcset=\"https:\/\/apaiser.org\/newsite\/wp-content\/uploads\/2026\/11\/mockupvivreavec.jpg 800w, https:\/\/apaiser.org\/newsite\/wp-content\/uploads\/2026\/11\/mockupvivreavec-300x200.jpg 300w, https:\/\/apaiser.org\/newsite\/wp-content\/uploads\/2026\/11\/mockupvivreavec-768x512.jpg 768w\" sizes=\"(max-width: 800px) 100vw, 800px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-48beb13 e-flex e-con-boxed e-con e-parent\" data-id=\"48beb13\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-61eeb7e e-con-full e-flex e-con e-child\" data-id=\"61eeb7e\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-dc8f1d4 elementor-widget elementor-widget-heading\" data-id=\"dc8f1d4\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">Vivre avec la douleur<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-cc84ac9 e-flex e-con-boxed e-con e-parent\" data-id=\"cc84ac9\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-bf7f5a4 e-con-full e-flex e-con e-child\" data-id=\"bf7f5a4\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-255cea2 elementor-widget elementor-widget-image\" data-id=\"255cea2\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;none&quot;}\" data-widget_type=\"image.default\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" width=\"300\" height=\"300\" src=\"https:\/\/apaiser.org\/newsite\/wp-content\/uploads\/2026\/11\/questdouleurs.jpg\" class=\"attachment-medium size-medium wp-image-9144\" alt=\"\" srcset=\"https:\/\/apaiser.org\/newsite\/wp-content\/uploads\/2026\/11\/questdouleurs.jpg 300w, https:\/\/apaiser.org\/newsite\/wp-content\/uploads\/2026\/11\/questdouleurs-150x150.jpg 150w\" sizes=\"(max-width: 300px) 100vw, 300px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-c76e6fc e-con-full e-flex e-con e-child\" data-id=\"c76e6fc\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-bd88f3e elementor-widget elementor-widget-text-editor\" data-id=\"bd88f3e\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p data-pm-slice=\"1 1 []\"><strong>Ce questionnaire s\u2019adresse aux personnes atteintes de Chiari ou de syringomy\u00e9lie vivant avec des douleurs.<\/strong> Il vise \u00e0 mieux comprendre leur manifestation et leur retentissement , les moyens mis en oeuvre pour de les soulager, le recours aux centres anti douleur et les besoins d\u2019accompagnement.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-462c267 elementor-align-center elementor-widget elementor-widget-button\" data-id=\"462c267\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t\t\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm elementor-animation-grow\" href=\"https:\/\/apaiser.org\/newsite\/questionnaire-douleurs\/\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">r\u00e9pondre au questionnaire<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-178c896 e-flex e-con-boxed e-con e-parent\" data-id=\"178c896\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-e190853 e-con-full e-flex e-con e-child\" data-id=\"e190853\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-d1ef587 elementor-widget elementor-widget-heading\" data-id=\"d1ef587\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">Grandir avec la maladie<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-16607f2 e-flex e-con-boxed e-con e-parent\" data-id=\"16607f2\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-7762816 e-con-full e-flex e-con e-child\" data-id=\"7762816\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-b8cd833 elementor-widget elementor-widget-image\" data-id=\"b8cd833\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;none&quot;}\" data-widget_type=\"image.default\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"300\" height=\"300\" src=\"https:\/\/apaiser.org\/newsite\/wp-content\/uploads\/2026\/11\/questgrandir.jpg\" class=\"attachment-medium size-medium wp-image-9145\" alt=\"\" srcset=\"https:\/\/apaiser.org\/newsite\/wp-content\/uploads\/2026\/11\/questgrandir.jpg 300w, https:\/\/apaiser.org\/newsite\/wp-content\/uploads\/2026\/11\/questgrandir-150x150.jpg 150w\" sizes=\"(max-width: 300px) 100vw, 300px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-fa313c4 e-con-full e-flex e-con e-child\" data-id=\"fa313c4\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-a2a1e02 elementor-widget elementor-widget-text-editor\" data-id=\"a2a1e02\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p data-pm-slice=\"1 1 []\"><strong>Ce questionnaire s\u2019adresse aux enfants et aux adolescents atteints de Chiari ou de syringomy\u00e9lie, ainsi qu&#8217;aux patients ayant \u00e9t\u00e9 diagnostiqu\u00e9s durant l&#8217;enfance.<\/strong> Il vise \u00e0 mieux conna\u00eetre leur v\u00e9cu de la maladie et ses cons\u00e9quences sur leur scolarit\u00e9, leurs loisirs, leurs relations familales et leurs projets d&#8217;avenir.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-4b07c0e elementor-align-center elementor-widget elementor-widget-button\" data-id=\"4b07c0e\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t\t\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm elementor-animation-grow\" href=\"https:\/\/apaiser.org\/newsite\/grandir-avec-un-chiari-ou-une-syringomyelie\/\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">r\u00e9pondre au questionnaire<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-eff1fb1 e-flex e-con-boxed e-con e-parent\" data-id=\"eff1fb1\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-d950498 e-con-full e-flex e-con e-child\" data-id=\"d950498\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-65e198d elementor-widget elementor-widget-heading\" data-id=\"65e198d\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">Etre parent ou proche d'un enfant malade<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-56f671e e-flex e-con-boxed e-con e-parent\" data-id=\"56f671e\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-db25691 e-con-full e-flex e-con e-child\" data-id=\"db25691\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-3ae12fd elementor-widget elementor-widget-image\" data-id=\"3ae12fd\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;none&quot;}\" data-widget_type=\"image.default\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"300\" height=\"300\" src=\"https:\/\/apaiser.org\/newsite\/wp-content\/uploads\/2026\/11\/questparents.jpg\" class=\"attachment-medium size-medium wp-image-9146\" alt=\"\" srcset=\"https:\/\/apaiser.org\/newsite\/wp-content\/uploads\/2026\/11\/questparents.jpg 300w, https:\/\/apaiser.org\/newsite\/wp-content\/uploads\/2026\/11\/questparents-150x150.jpg 150w\" sizes=\"(max-width: 300px) 100vw, 300px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-ead1759 e-con-full e-flex e-con e-child\" data-id=\"ead1759\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-94e05d7 elementor-widget elementor-widget-text-editor\" data-id=\"94e05d7\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p data-pm-slice=\"1 1 []\"><strong>Ce questionnaire s\u2019adresse aux parents et aux proches (grands-parents, fratries&#8230;) d\u2019un enfant atteint de Chiari ou de syringomy\u00e9lie.<\/strong> Il vise \u00e0 comprendre leur exp\u00e9rience de l\u2019accompagnement, les difficult\u00e9s rencontr\u00e9es, l&#8217;impct de la maladie de l&#8217;enfant dans la sph\u00e8re scolaire et familiale, et leurs besoins d\u2019information et de soutien.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-7ec8186 elementor-align-center elementor-widget elementor-widget-button\" data-id=\"7ec8186\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t\t\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm elementor-animation-grow\" href=\"https:\/\/apaiser.org\/newsite\/etre-parent-ou-proche-dun-enfant-malade\/\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">r\u00e9pondre au questionnaire<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-5082780 e-flex e-con-boxed e-con e-parent\" data-id=\"5082780\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-8d5c4fa e-con-full e-flex e-con e-child\" data-id=\"8d5c4fa\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-4129dcf elementor-widget elementor-widget-heading\" data-id=\"4129dcf\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t\t<h3 class=\"elementor-heading-title elementor-size-default\">La vie d'apr\u00e8s le diagnostic et la convalescence<\/h3>\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-6792cd1 e-flex e-con-boxed e-con e-parent\" data-id=\"6792cd1\" data-element_type=\"container\" data-e-type=\"container\" data-settings=\"{&quot;background_background&quot;:&quot;classic&quot;}\">\n\t\t\t\t\t<div class=\"e-con-inner\">\n\t\t<div class=\"elementor-element elementor-element-a6e689c e-con-full e-flex e-con e-child\" data-id=\"a6e689c\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-b4075fb elementor-widget elementor-widget-image\" data-id=\"b4075fb\" data-element_type=\"widget\" data-e-type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;none&quot;}\" data-widget_type=\"image.default\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img loading=\"lazy\" decoding=\"async\" width=\"300\" height=\"300\" src=\"https:\/\/apaiser.org\/newsite\/wp-content\/uploads\/2026\/11\/questviedapres.jpg\" class=\"attachment-medium size-medium wp-image-9147\" alt=\"\" srcset=\"https:\/\/apaiser.org\/newsite\/wp-content\/uploads\/2026\/11\/questviedapres.jpg 300w, https:\/\/apaiser.org\/newsite\/wp-content\/uploads\/2026\/11\/questviedapres-150x150.jpg 150w\" sizes=\"(max-width: 300px) 100vw, 300px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t<div class=\"elementor-element elementor-element-c68b2cb e-con-full e-flex e-con e-child\" data-id=\"c68b2cb\" data-element_type=\"container\" data-e-type=\"container\">\n\t\t\t\t<div class=\"elementor-element elementor-element-b1e7619 elementor-widget elementor-widget-text-editor\" data-id=\"b1e7619\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t\t\t\t\t\t<p data-pm-slice=\"1 1 []\"><strong>Ce questionnaire s\u2019adresse aux personnes ayant re\u00e7u un diagnostic de Chiari ou de syringomy\u00e9lie, qu\u2019elles aient \u00e9t\u00e9 op\u00e9r\u00e9es ou non.<\/strong> Il vise \u00e0 explorer les r\u00e9percussions psychologiques du diagnostic, le cheminement vers l\u2019acceptation de la maladie et, le cas \u00e9ch\u00e9ant, le v\u00e9cu de la convalescence post-op\u00e9ratoire.<\/p>\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-36198b0 elementor-align-center elementor-widget elementor-widget-button\" data-id=\"36198b0\" data-element_type=\"widget\" data-e-type=\"widget\" data-widget_type=\"button.default\">\n\t\t\t\t\t\t\t\t\t\t<a class=\"elementor-button elementor-button-link elementor-size-sm elementor-animation-grow\" href=\"https:\/\/apaiser.org\/newsite\/la-vie-dapres\/\">\n\t\t\t\t\t\t<span class=\"elementor-button-content-wrapper\">\n\t\t\t\t\t\t\t\t\t<span class=\"elementor-button-text\">r\u00e9pondre au questionnaire<\/span>\n\t\t\t\t\t<\/span>\n\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>Recherche m\u00e9dicale Accueil \/ Recherche m\u00e9dicale \/Vivre avec Enqu\u00eate &#8220;vivre avec le Chiari ou la syringomy\u00e9lie&#8221; Cinq ans apr\u00e8s la r\u00e9alisation de l\u2019enqu\u00eate \u00ab Vivre avec le Chiari ou la [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"elementor_header_footer","meta":{"inline_featured_image":false,"footnotes":""},"class_list":["post-9138","page","type-page","status-publish","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.8 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ 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