{"id":8387,"date":"2025-04-04T15:31:10","date_gmt":"2025-04-04T13:31:10","guid":{"rendered":"https:\/\/apaiser.org\/newsite\/?p=8387"},"modified":"2025-04-04T15:31:11","modified_gmt":"2025-04-04T13:31:11","slug":"conseil-national-de-lalliance-maladies-rares","status":"publish","type":"post","link":"https:\/\/apaiser.org\/newsite\/2025\/04\/04\/conseil-national-de-lalliance-maladies-rares\/","title":{"rendered":"Conseil national de l’Alliance Maladies Rares"},"content":{"rendered":"\n

Jeudi 3 avril se tenait \u00e0 Paris le Conseil national de l’Alliance Maladies Rares, au sein duquel APAISER S&C est repr\u00e9sent\u00e9 par sa pr\u00e9sidente, Mado Gilanton.<\/p>\n\n\n\n

A l’ordre du jour : une pr\u00e9sentation du PNMR 4 2025-2030, entr\u00e9 en vigueur le 25 f\u00e9vrier dernier et des commissions de travail ayant particip\u00e9 \u00e0 son \u00e9laboration ; focus sur le colloque p\u00e9diatrique qui se tiendra au S\u00e9nat le 25 avril prochain ; pr\u00e9sentation du programme du congr\u00e8s de l’Alliance Maladies Rares, qui f\u00eatera ses 25 ans les 5 et 6 juin prochains, au G\u00e9nocentre d’Evry.<\/p>\n\n\n\n

Pr\u00e9sidente d’APAISER S&C, Mado Gilanton a fait un point pour pr\u00e9senter aux membres du Conseil National l’avanc\u00e9e du dossier \u00ab\u00a0cannabis th\u00e9rapeutique\u00a0\u00bb, et notamment les engagements pris le 19 mars par le gouvernement<\/a> pour inscrire ces traitements dans le droit commun.<\/p>\n","protected":false},"excerpt":{"rendered":"

Jeudi 3 avril se tenait \u00e0 Paris le Conseil national de l’Alliance Maladies Rares, au sein duquel APAISER S&C est repr\u00e9sent\u00e9 par sa pr\u00e9sidente, Mado Gilanton.<\/p>\n","protected":false},"author":1,"featured_media":8388,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"inline_featured_image":false,"footnotes":""},"categories":[35],"tags":[],"class_list":["post-8387","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-actus"],"yoast_head":"\nConseil national de l'Alliance Maladies Rares - Apaiser S&C<\/title>\n<meta name=\"description\" content=\"Jeudi 3 avril se tenait \u00e0 Paris le Conseil national de l'Alliance Maladies Rares, au sein duquel APAISER S&C est repr\u00e9sent\u00e9 par sa pr\u00e9sidente, Mado Gilanton.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" 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